My sister Ashley gets sicker and more fatigued as
the days wear on and her body becomes more worn down.
And so I've been focused on fundraising for
my sister Ashley's kidney transplant, including planning
a huge carnival for this weekend. I haven't shared this, but her insurance denied coverage, so we've been numb and scrambling. We're currently in the appeals process, but we have no idea whether it will be successful.
I have learned a new term:
bronchial obliterans. As in, obliterated bronchial tissue. As in,
lungs that aren't viable long term. It hurts to acknowledge, but that horribly clinical term is a huge reason for the denial. Ashley's insurance is basically saying they don't want to pay for a kidney transplant when her lungs are going to give out sooner rather than later. They'd rather spend that money on a patient with the promise of a long life.
The situation is grim and morbid. We are hopeful and counting the many blessings life has given: the double lung transplant, thirty some years of more good health than bad, a community that has thrown its support behind our family.
And these two children who already have some pretty amazing memories of their aunt, and who love helping to raise money for her transplant. They will remember Ashley being healthy and vivacious, her spending lots of time with them when I needed to do something kid-free, her being so young and hip that people assume she's my daughter.
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At the coast last week, Javi pointed across the Atlantic and told Bella
that "Ashley used to live right over there," referring to the years she lived
in England. Bella did not fall for it. |
My children are being shaped in such a fulfilling and profound way by their relationship with this woman who may not see them into adulthood.
And that is a blessing for all of us.
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